March PKU & Brain Health Update:
- Rare Disease Day equity report,
- PKU research, pancake recipes,
- brain injury app trials,
- and a book sale ending 7th March! Share your story & support the community.
https://www.pigpen.page/march-2026/
#pku #rarediseaseawareness #shareyourstory #phenylketonuria #braininjury
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To all PKU folks - Share your story!
@poconnor@pkutalk.com has got some great PKU stories on her blog - one from yours truly 🧐 - and you can add your story into the mix as well!
Visit this link to find out more: https://www.pigpen.page/share-your-story-2/
#phenylketonuria #phenylcetonurie #pku #pcu #lowprotein
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Your Story Matters!
For Rare disease day, people with PKU are sharing their story.
👧 Clair discusses parenting with PKU, when your child does not have PKU - and the interesting challenges she has faced.
🍫 Ifan shares his experience navigating the manosphere, and what that meant for his PKU and mental health.
📦️ Soheb wrote a series of blogs for PigPen - looking at moving home with PKU, and getting into the gym.
https://www.pigpen.page/share-your-story-2/
#ShareYourStory #PKU #RareDiseaseDay #RareAware
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Monthly email on PKU, Brain, and Mental Health:
🆓 A free workshop on Living with PKU
💊 Genetic medicine, personalised treatments, and PKU
🧠 Campaigning for change in strokes and brain injury support
and 💉 What is the PKU injection (Palynziq)?
https://www.pigpen.page/february-2026/
#PKU #LivingwithPKU #Phenylketonuria #Palynziq #BrainHealth #BrainInjury #Stroke #NHS
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