March PKU & Brain Health Update:
- Rare Disease Day equity report,
- PKU research, pancake recipes,
- brain injury app trials,
- and a book sale ending 7th March! Share your story & support the community.
https://www.pigpen.page/march-2026/
#pku #rarediseaseawareness #shareyourstory #phenylketonuria #braininjury
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To all PKU folks - Share your story!
@poconnor@pkutalk.com has got some great PKU stories on her blog - one from yours truly 🧐 - and you can add your story into the mix as well!
Visit this link to find out more: https://www.pigpen.page/share-your-story-2/
#phenylketonuria #phenylcetonurie #pku #pcu #lowprotein
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@phenylketonurianotebook@pkutalk.com
·
Feb 23, 2026
Tristan
@phenylketonurianotebook@pkutalk.com
Gars du Lac St-Jean au #Québec, #Canada. I love photography, cinema, music, technology et j'ai un grand intérêt pour la santé globale. Trying to learn #Linux, je suis particulièrement intéressé par la vie privée en ligne (online privacy). 🔓 Phenylketonuria Notebook is dedicated to sharing experiences and resources about living with PKU. Born from a personal journey, this notebook aims to inform, support, and bring the community together, without medical pretension.
pkutalk.com
Je commence à m'intéresser à un aspect hors du commun que je trouve pertinent avec la #phénylcétonurie : la tentation.
Ça vous intéresserait une vidéo sur le sujet?
I'm starting to take an interest in an unusual aspect that I find relevant to #phenylketonuria: temptation.
Would you be interested in a video on the subject?
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@phenylketonurianotebook@pkutalk.com
·
Feb 01, 2026
Tristan
@phenylketonurianotebook@pkutalk.com
Gars du Lac St-Jean au #Québec, #Canada. I love photography, cinema, music, technology et j'ai un grand intérêt pour la santé globale. Trying to learn #Linux, je suis particulièrement intéressé par la vie privée en ligne (online privacy). 🔓 Phenylketonuria Notebook is dedicated to sharing experiences and resources about living with PKU. Born from a personal journey, this notebook aims to inform, support, and bring the community together, without medical pretension.
pkutalk.com
New treatment, new hope.
But it is at a very early stage.
👉 https://open.substack.com/pub/pcublogue/p/un-nouveau-signal-du-cote-de-la-recherche
#Phenylketonuria #Phenylcetonurie
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Monthly email on PKU, Brain, and Mental Health:
🆓 A free workshop on Living with PKU
💊 Genetic medicine, personalised treatments, and PKU
🧠 Campaigning for change in strokes and brain injury support
and 💉 What is the PKU injection (Palynziq)?
https://www.pigpen.page/february-2026/
#PKU #LivingwithPKU #Phenylketonuria #Palynziq #BrainHealth #BrainInjury #Stroke #NHS
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