take care people and good luck 
#MCAS #POTS #hEDS #LongCovid #allergies
@moonrabbit@sunny.garden
·
3d ago
laen 🌿
@moonrabbit@sunny.garden
ceramicist making shinto + shamanic raku sculpture to help save the world. i love nature and cats and get v upset about the state of everything. from wales/ie, in france for now. autism + agender + not very human + hEDS, autoimmune inflammatory arthritis, lupus/sjögrens, MVP, dysautonomia, POTS, MCAS, etc. 😷 sculptures: https://www.driftingspirits.art provide tea: https://ko-fi.com/moon_bun take care out there hoomans 
free 🇵🇸 🔥🌍💔 ffs people just be decent
sunny.garden
🔥 psa for anyone taking quercetin on a regular basis 🔥
this may be common knowledge and just previously unknown to me, but i've just today discovered that quercetin chelates iron/blocks iron absorption and can lead to anaemia and/or low ferritin levels. so if you're taking it regularly, please have things checked!
(and if ferritin is low enough, just stopping quercetin won't be enough to bring it up and possibly neither will otc iron supplements, so please do get some numbers / help if necessary)
i've just been in tears from finding this out as quercetin is one of the few things that helps me at all, and given i have no medical care, one of the few things i can access. i've been taking a decent dose daily for the past ... 13 years? but my ferritin was on the floor at my last blood test a year ago (ofc i couldn't find anyone to do anything about that). and i can't even take oral iron, not that it would help if i could, given my levels, but. yes. yay
take care people and good luck
#MCAS #POTS #hEDS #LongCovid #allergies
take care people and good luck
#MCAS #POTS #hEDS #LongCovid #allergies
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@alexisbushnell@toot.wales
·
Apr 23, 2026
Alexis Bushnell
@alexisbushnell@toot.wales
Alexis Bushnell - she/her. Neurodivergent knot untangler - slaying your brain gremlins with practical, personalised help. Open University student. Social media volunteer at @RepairCafe_Barry. Organiser at @Weirdos_Queerdos. Passionate about accessibility and sustainability. New but huge DND fan & forever DM. Autistic. Ambulatory wheelchair user thanks to long covid. Posts auto delete after 6 months.
toot.wales
RE: https://toot.wales/@alexisbushnell/116443842047664326
People with #PoTS - is this standard for that?
It was actually 2 hours I was on the floor. And then yesterday it happened again but 2 hours laying in bed with shortness of breath, body twitching, out of it.
#ChronicIllness
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@juchti@mastodon.social
·
Feb 12, 2026
Christina Koch
@juchti@mastodon.social
Der Stil ist die Physiognomie des Geistes. (Schopenhauer) Köpenickerin, jetzt im Rheingau. Lehrerin. Antifaschistin. LGBTQIA+ Ally. Seit August 2023 schwer an ME/CFS, POTS, MCAS und CCI erkrankt und 23h/Tag bettlägerig. Ein ❤️ für Prog und die Liebe. Nur der 1. FC Union Berlin #SchönerEisernOhneNazis #fcunion #eisern #bildung #fediLZ #progressiverock #wandern #mecfs #longcovid #mekills #chronicillness
mastodon.social
Es tut mir so gut, draußen unterwegs zu sein. Aber es kostet meinen Körper so viel Kraft. Es ist, als bräuchte ich unglaublich viel Kraft, mich aufrecht zu halten. Die Muskeln müssen so irre viel arbeiten. Was für Dreckskrankheiten sind das bloß, verdammte Hacke!
#MEcfs #POTS #CCI #MCAS
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